Data Dilemmas: Making Secondary health data work for all

Thursday 18th April 3-4.30pm (GMT+1)

Online Event

Join us for an engaging webinar as we navigate the complex landscape of secondary health data utilisation and address the challenges and opportunities it presents in healthcare. This session is designed to explore the various dilemmas surround the secondary use of health data. Health data holds immense promise in driving research, informing clinical decision-making, and improving patient outcomes. However, navigating the ethical, legal, and technical complexities associated with secondary health data presents a myriad of challenges that must be carefully addressed to ensure equitable access, privacy protection, and data transparency for all.

The webinar brings together a diverse panel of experts who will cover topics such as data privacy and security, equity and access, community engagement and trust, regulatory compliance and policy, data governance and transparency. Real world examples will be discussed and participants will gain insights into the complexities inherent in secondary health data usage as well as actionable strategies for addressing these challenges.

This webinar offers a unique opportunity to engage in critical dialogue, share best practices, and collaborate on solutions to the data dilemmas facing the secondary use of health data. Join us as we work towards harnessing the power of data to drive positive change and advance health equity for all.

Register now to secure your spot in this timely and thought-provoking discussion on making secondary health data work for the benefit of all stakeholders.

Register Here

Chair

Managing Director, Xenon Health Solutions

Dr Liz Tully

Managing Director, Xenon Health Solutions

Dr Liz Tully

Liz is a skilled healthcare leader with a strong background in clinical research design, implementation, and evaluation. With a PhD in Applied Biochemistry from DCU and an MSc in Healthcare Leadership from RCSI, Liz began her career as a researcher in the field of immunodiagnostics working in the UK and the US before moving into the area of research management and programme development. Liz brings a real-world understanding of how healthcare is currently organised and delivered. Throughout her career, she has identified the strengths and weaknesses within the current system and has utilised this to help develop unique structures and processes to navigate these challenges within clinical programmes, health projects and industry collaborations.

Speakers

Principal Officer & Head of the Health Information Policy, Department of Health, Government of Ireland

Dr Sarah Gibney

Professor in Biostatistics, Head of the Data Science Centre and Deputy Head of the School of Population Health for Research in RCSI; Digital Health Investigator, SFI FutureNeuro Research Centre

Professor Kathleen Bennett

General Manager, IQVIA Ireland

Gwynne Morley

SVP/Chief Digital Health Officer + Associate Dean, Digital Strategy and Transformation, Yale New Haven Health System and Yale School of Medicine

Dr Lee Schwamm

Principal Officer & Head of the Health Information Policy, Department of Health, Government of Ireland

Dr Sarah Gibney

  • Leading the Health Information Bill, development of the Health Data Access Body and Ireland’s involvement in the European Health Data Space (EHDS)) 
  • Sarah is a Principal Officer within the R &D and Health Analytics Division of the Department of Health. She is also Head of Health Information Policy. With over 15 years’ experience in public sector health analytics and R&D, Sarah is leading the development and implementation of policy and strategy to strengthen the governance, quality, and use of health information for care and treatment and for secondary purposes such as research, policy and planning. This includes national and EU legislation. Sarah has held numerous roles focused on transformation including Head of The Women’s Health Taskforce and Head of Policy, Strategy & Integration at the Department of Health. As a Senior Analyst in the Irish Government Economic and Evaluation Services (IGEES) Sarah played a leading role in the strategic delivery of the National Covid-19 Biobank infrastructure, the Covid Tracker App, and the Healthy & Positive Ageing Initiative. Sarah is passionate about health sector collaboration and innovation for growth and transformation and is an advocate for health literacy patient empowerment and person-centred design.
Professor in Biostatistics, Head of the Data Science Centre and Deputy Head of the School of Population Health for Research in RCSI; Digital Health Investigator, SFI FutureNeuro Research Centre

Professor Kathleen Bennett

Professor Kathleen Bennett is a Professor in Biostatistics, Head of the Data Science Centre and Deputy Head of the School of Population Health for Research in RCSI and Digital Health Investigator, SFI FutureNeuro Research Centre. Prior to this Professor Bennett held a Health Research Board Research Leader Award in RCSI, which involved undertaking a programme of research on medication safety and adherence. She moved to RCSI from Trinity College Dublin where she was a Senior Lecturer in Pharmacoepidemiology. Professor Bennett leads a research team undertaking a programme of research in health services research, population Health and epidemiology across different chronic diseases and conducts modelling studies in chronic disease to better understand factors associated with disease progression and outcomes.
She is a funded investigator in the SFI FutureNeuro Centre and currently involved in two projects in the SFI EMPOWER spoke.

General Manager, IQVIA Ireland

Gwynne Morley

Gwynne is the former Director of Heart & Vascular, Diabetes & Emergency Department at the Mater Private Hospital and former Managing Director at Uniphar Retail Services division. She has extensive experience and knowledge of the pharmaceutical industry, from the manufacturer to the patient. Previously she worked for United Drug Group (UDG) Healthcare for 13 years where she was a member of the Senior Executive team. During her tenure with UDG, she held several senior roles namely in pre-wholesale, consumer, homecare and quality. Before joining UDG, she held management positions within the Crowley Retail Pharmacy Chain and held a multifunctional role within the medical department of Zeneca Pharma, Ireland. Gwynne is a pharmacy graduate of Trinity College, Dublin.

SVP/Chief Digital Health Officer + Associate Dean, Digital Strategy and Transformation, Yale New Haven Health System and Yale School of Medicine

Dr Lee Schwamm

Before joining Yale, Dr. Schwamm spent 3 decades of service at the Mass General Brigham Health System in academic and administrative leadership roles. He was the inaugural C. Miller Fisher Chair in Vascular Neurology, Executive Vice Chair of Neurology and Director of the Center for TeleHealth at Massachusetts General Hospital; Vice President for Digital Patient Experience and Virtual Care, and Chief Digital Advisor for the Mass General Brigham Health System, and a Professor of Neurology at Harvard Medical School. He oversaw all systemwide virtual care and telehealth activities including synchronous and synchronous virtual visits and consults, remote patient monitoring, virtual urgent care and online second opinions. During the first 6 months of COVID, he led adoption efforts for 10,000 clinicians to provide over 1.7 M virtual visits, and introduced a suite of innovative inpatient virtual solutions.

A graduate of both Harvard College and Harvard Medical School, he completed residency training in neurology, and fellowship training in stroke and neurocritical care, all at Massachusetts General Hospital where he subsequently joined the faculty in 1996. He has spent the past 2 decades in telehealth, as a pioneer in telestroke and a leading advocate and policy advisor for the American Heart Association. He is a an internationally recognized expert in stroke diagnosis, treatment and prevention and a Fellow of the American Heart Association, American Academy of Neurology and the American Neurological Association. His research has been funded by many organizations including the NIH, AHA, PCORI, AHRQ, HRSA, CDC, and others, and he is the author of >500 peer-reviewed articles and chaired many of the current practice guidelines for stroke and telehealth-enabled care delivery. Under his leadership, the AHA Get with the Guidelines–Stroke Registry has grown into the world’s largest stroke registry with over 8M patient encounters; it has changed stroke practice at hospitals across the US, and set a global standard for stroke care. He has received numerous awards for innovation, leadership, and advocacy in the field of stroke and digital health, and held many senior leadership positions within the AHA, including service on their National Board of Directors. He has served on multiple editorial boards, including the digital health section editor for Stroke, and the international advisory board for Lancet Digital Health.

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