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Project Description:
The #ENDOs project empowers women with endometriosis through non-formal adult education. It combines art, narrative medicine, and digital tools to strengthen patient voices, support carers, and build a European community. By training ENDOs and caregivers, it improves communication, wellbeing, and gender equality in healthcare across generations.​

Funding: EU Erasmus+

Project Website: https://endostories.eu/

Researchers in IVI: Marco Alfano, Markus Helfert

Project Partners: Le LABA (Bordeaux, France), Momentum Marketing Services Limited (Leitrin, Ireland), L’agence Creative (Bordeaux, France), Vulgaroo (Bordeaux, France), Turun Yliopisto (Turku, Finland), Stockholms Kvinnohistoriska (Stockholm, Sweden) Maynooth University (Maynooth, Ireland), University of Palermo (Palermo, Italy), DNM SRL (Rome, Italy).

Timeframe: 2023-2026

Resources:

Link to the Simplendo platform, a simple interface that helps users understand medical reports of patients with endometriosis by simplifying medical/technical terms and adding information in simple language.
Link to the Endostand platform, designed to simplify medical reports and improve communication between patients and healthcare providers.

About the Researchers:

Person-Driven, Health & Wellbeing Cluster Lead

Dr Marco Alfano
Director

Professor Markus Helfert

Person-Driven, Health & Wellbeing Cluster Lead

Dr Marco Alfano

Dr. Marco Alfano is a Senior Researcher at the Innovation Value Institute (IVI), Maynooth University, and leader of the IVI Person-Driven, Health & Wellbeing research cluster. He is also affiliated with Lero, the SFI Research Centre for Software, and receives SFI funding for his research. He is currently working on responsible use of AI in health and well-being by facilitating person/patient empowerment and seamless communication within the healthcare system (http://cohealth.ivi.ie/). His research interests include Responsible AI, Digital Health Transformation, Patient Empowerment, Human-machine communication, Data analytics, Semantic Web, Smart cities, Cybersecurity, and Open Data/Big Data. He has authored more than fifty peer reviewed articles for journals, books, and conferences. He has participated in several European projects and has received grants from international bodies, such as the European Union (under the FP7 and H2020 framework programs), and national bodies, such as Science Foundation Ireland, Enterprise Ireland, and the National Research Council of Italy.

 

Director

Professor Markus Helfert

Markus Helfert is the Director of IVI and Professor of Digital Service Innovation at Maynooth University. He is also Director of the Business Informatics Group at Maynooth University. He is a Principle Investigator at Lero – The Irish Software Research Centre and at the Adapt Research Centre. His research is centred on Digital Service Innovation, Smart Cities and IoT based Smart Environments and includes research areas such as Service Innovation, Intelligent Transportation Systems, Smart Services, Building Information Management, FinTech, Data Value, Enterprise Architecture, Technology Adoption, Analytics, Business Process Managem ent. Prof. Helfert is an expert in Data Governance Standards and is involved in European Standardisation initiatives. Markus Helfert has authored more than 200+ academic articles, journal and book contributions and has presented his work at international conferences. Helfert has received national and international grants from agencies such as European Union (FP7; H2020), Science Foundation Ireland and Enterprise Ireland, was project coordinator on EU projects, and is the Project coordinator of the H2020 Projects: PERFORM on Digital Retail.

Email:Markus.Helfert@mu.ie